Younger than usual with severe osteoporosis

Thank you so much for taking the time to offer guidance. As a librarian, it should be easy enough to get my hands on Dr. McCormick's book. I'll also do a deeper dive into the threads on here. All the best to you as well.

@hopefullibrarian
Hi! I just joined this forum because I am 51 and was recently diagnosed with Osteoporosis.My story is similar to yours in that I have done what I could to strengthen my bones and have a mother who was diagnosed with Osteoporosis in her 50’s. She is in her 80’s and has been okay.
My story: I knew I had low bone density and was checked last year for underlying causes but the doctor did not find any causes. I had another DEXA this July. My scores were: -2.6 Lumbar spine, -2.8 Femoral neck, -2.6 hip. My Trabecular Bone Score for regions L1-L4 is 1.211 which “indicates partial degradation of bone micro architecture.” I lost 9.4% in bone mineral density in my spine in just this last year despite doing recommended exercise. So, I barely know what this means because when I got the results I called my doctor who runs a bone clinic and was told I could not book an appointment because she is booked out. This led to a frustrating series of messages in my portal in which she told me to take a Bisphosphonate. I expressed concern at starting this medication at a relatively young age but never got an answer and have felt increasingly doomed. I am scheduled to see a different doctor who is an Endocrinologist this Friday. I joined this forum for support and to start to research my options.
Thank you @pedsnurse61 for the book recommendation. I just ordered it. I am feeling rather lost so grateful to have found this group. Also, thanks @artscaping for your comments. I don’t even know what Tymlos is but it gives me hope that there are effective treatments.

@hopefullibrarian
Hi! I just joined this forum because I am 51 and was recently diagnosed with Osteoporosis.My story is similar to yours in that I have done what I could to strengthen my bones and have a mother who was diagnosed with Osteoporosis in her 50’s. She is in her 80’s and has been okay.
My story: I knew I had low bone density and was checked last year for underlying causes but the doctor did not find any causes. I had another DEXA this July. My scores were: -2.6 Lumbar spine, -2.8 Femoral neck, -2.6 hip. My Trabecular Bone Score for regions L1-L4 is 1.211 which “indicates partial degradation of bone micro architecture.” I lost 9.4% in bone mineral density in my spine in just this last year despite doing recommended exercise. So, I barely know what this means because when I got the results I called my doctor who runs a bone clinic and was told I could not book an appointment because she is booked out. This led to a frustrating series of messages in my portal in which she told me to take a Bisphosphonate. I expressed concern at starting this medication at a relatively young age but never got an answer and have felt increasingly doomed. I am scheduled to see a different doctor who is an Endocrinologist this Friday. I joined this forum for support and to start to research my options.
Thank you @pedsnurse61 for the book recommendation. I just ordered it. I am feeling rather lost so grateful to have found this group. Also, thanks @artscaping for your comments. I don’t even know what Tymlos is but it gives me hope that there are effective treatments.

It might be awhile for you to get the book from the library, It is such a great resource it will be worth buying it and taking your time to educate yourself. Those of us that have been on this site for awhile have read it and it really goes into detail about everything you would want to know about Osteoporosis and the treatments available. I was also diagnosed young ( age 50). I have not had any fractures ( thankfully) and wish I had taken the time to educate myself way back than ( I am 62 now). My mom also had Osteoporosis and passed away after her second hip fracture. This is a life long condition and you need to find the right Physician who will listen to your concerns, order the correct lab tests and support you.

Are you on any medications for osteoporosis? If so, any side effects and have you gotten good results from the meds? Thanks.

@hopefullibrarian
Hi! I just joined this forum because I am 51 and was recently diagnosed with Osteoporosis.My story is similar to yours in that I have done what I could to strengthen my bones and have a mother who was diagnosed with Osteoporosis in her 50’s. She is in her 80’s and has been okay.
My story: I knew I had low bone density and was checked last year for underlying causes but the doctor did not find any causes. I had another DEXA this July. My scores were: -2.6 Lumbar spine, -2.8 Femoral neck, -2.6 hip. My Trabecular Bone Score for regions L1-L4 is 1.211 which “indicates partial degradation of bone micro architecture.” I lost 9.4% in bone mineral density in my spine in just this last year despite doing recommended exercise. So, I barely know what this means because when I got the results I called my doctor who runs a bone clinic and was told I could not book an appointment because she is booked out. This led to a frustrating series of messages in my portal in which she told me to take a Bisphosphonate. I expressed concern at starting this medication at a relatively young age but never got an answer and have felt increasingly doomed. I am scheduled to see a different doctor who is an Endocrinologist this Friday. I joined this forum for support and to start to research my options.
Thank you @pedsnurse61 for the book recommendation. I just ordered it. I am feeling rather lost so grateful to have found this group. Also, thanks @artscaping for your comments. I don’t even know what Tymlos is but it gives me hope that there are effective treatments.

Currently I am on Fosimax and a low dose Premarin patch, both prescribed by my Endocrinologist. No side effects from these medications. Unfortunately I have been on several other medications and had no improvement in my DEXA numbers ( I am unique and unusual). The last medication before Fosimax I was taking Evenity but had to stop due to side effects that I had. I have only been on Fosimax for 2 months.

@hopefullibrarian
Hi! I just joined this forum because I am 51 and was recently diagnosed with Osteoporosis.My story is similar to yours in that I have done what I could to strengthen my bones and have a mother who was diagnosed with Osteoporosis in her 50’s. She is in her 80’s and has been okay.
My story: I knew I had low bone density and was checked last year for underlying causes but the doctor did not find any causes. I had another DEXA this July. My scores were: -2.6 Lumbar spine, -2.8 Femoral neck, -2.6 hip. My Trabecular Bone Score for regions L1-L4 is 1.211 which “indicates partial degradation of bone micro architecture.” I lost 9.4% in bone mineral density in my spine in just this last year despite doing recommended exercise. So, I barely know what this means because when I got the results I called my doctor who runs a bone clinic and was told I could not book an appointment because she is booked out. This led to a frustrating series of messages in my portal in which she told me to take a Bisphosphonate. I expressed concern at starting this medication at a relatively young age but never got an answer and have felt increasingly doomed. I am scheduled to see a different doctor who is an Endocrinologist this Friday. I joined this forum for support and to start to research my options.
Thank you @pedsnurse61 for the book recommendation. I just ordered it. I am feeling rather lost so grateful to have found this group. Also, thanks @artscaping for your comments. I don’t even know what Tymlos is but it gives me hope that there are effective treatments.