I, just like many of you, have had a constant 24/7 twitching across the board. It is in my calves mainly, it also occurs in my arms, shins, buttox, neck, hands, feet, and even in my eye. It started about 4 months ago when I began to lose a massive amount of energy. I'm a swimmer (or was) and a cyclist and I had bags of energy when suddenly, almost overnight, I didn't. I started feeling 'digging' or prodding sensations across my body and also burning sensations in my feet. I also started feeling little 'touches' or odd sensations across my hands and feet.

I then started to get an extremely dry tongue that unbeknownst to me actually developed into thrush. This took 3 months to discover by the doctors whom I mentioned my tongue to 3 times.

I went to the doctor and after a few blood tests, I was found to have folic deficiency. At this point, I was told that everything would clear up and that it would be okay but they wanted to check for celiac disease just in case. I was all clear of that but then I was told there was some protein in my blood and they wanted to check for myeloma/amyloidosis. Because of our blood test waiting list at our GP and through a set of really bad circumstances, I had to wait just over a month to hear the results (they clearly didn't think the test was that important, and the doctor didn't even give me the all clear until my catchup appointment with them). During that time, I did the insane, stupid thing of looking on the Internet and worrying myself silly. I started to develop a scalloped tongue (a symptom of amyloidosis), which was unknown to me at the time and was likely down to my thrush and/or my developing anxiety, so, of course, I fretted even more. I was close to panicking. (More on this later).

I went back to the doctor and told them about my tongue, they didn't seem that concerned (without taking a swab or inspecting that closely) - and I was on my way again. My tongue, by the way, was filmy and scalloped quite badly.

It was around this time that I fell off my bike and cut myself up pretty badly. About 2/3 days later I had a rush of pain through my head on my right side in the temple, like a severe burning. The back of my head started to twitch and then it moved to my left eye. A few days later, maybe a week, twitches and popping/buzzing sensations in my calves began. It took a week of this, worry and fretting before it turned into very fine movements, sometimes undetectable by feel in the legs, which you only know is going on if you look, which has been ongoing now 24/7 for over 2 months. They developed into twitches and buzzes in the arms, legs, buttox, lip, and neck - my right peck even buzzed for a day or so before stopping.

I finally went back to the doctor for my protein results only to be told that I didn't have any cancers, I told them about my twitches but because she couldn't see them in the appointment ( as they were at this stage very fine) she told me it was stress and to stop worrying, stay off caffeine, etc. She did a rudimentary strength test on me and told me that I didn't have any clinical weakness that she could detect. She finally swabbed my tongue and told me I had thrush which is all sorted now.

Since then I have gotten worse. I think my mind has swapped from thinking it was cancer to thinking it was possibly MNS/ALS and my body has just gone crazy. I know logically that ALS has far different presentations including clinical weakness that isn't perceived and is a 'doing' issue rather than a 'feeling issue' but I am now having periodic stabbing and prodding pains - I keep overly checking my body. I have what I can describe as 'wet pins and needles that sweep across me from time to time and I feel utterly fatigued; all the while twitching and shuddering and buzzing constantly.

I am going back to the doctors and readdress this as i feel something is missing that they didn't check. It's been a nightmare.