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New Here and need to learn fast

Lung Cancer | Last Active: Oct 31, 2023 | Replies (69)

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@flusshund

As a Stage 4 lung cancer survivor, I'm starting to give talks on Lung Cancer Awareness and Prevention. Based on my experience, I'll offer a couple of points.

1. Don't do research. Or, if you do, don't take your understanding too seriously. You're not going to replace a medical degree with a Google search.

2. Probably the most useful questions are those that ask your doctor what he/she is thinking, planning, believes is a possible explanation of what's going on, etc.

3. If or when you get a cancer diagnosis, be ready for the whirlwind, as I call it in my presentation. Once they know you have cancer, they want to get it out!

4. Don't overreact to words like "suspected metastatic ...". I had that in late July. I've been getting a CAT scan, brain MRI, MUGA scan (heart), and blood tests for 2 or 3 doctors every 3 months for the last 3 years. Two successive CAT scans showed lymph nodes that had grown by 50%. I had another blood test, specifically looking for tumor markers and a PET scan. Then I went on vacation! I told my wife, "Until I'm diagnosed with lung cancer again, I'm still cancer-free." I enjoyed my vacation, came back, met with my Oncologist, and all tests came back negative. Don't worry until you know you have something to worry about! Negative emotions harm the physical body.

5. A PET scan shows where the body is sucking up sugar. There are three reasons a body does that: inflammation, infection, and metastasis. When I was first diagnosed in 2018, my Pulmonologist said he had seen an infection absorb more sugar than my nodule was. Nonetheless, the biopsy showed my nodule was cancerous. In your case, you're being prescribed antibiotics. Maybe infection is causing all of your problems. Realize that statement is complete speculation and should be valued accordingly.

It's important to remember that in these circumstances, we're not in control. We're just along for the ride. Trust your doctors. I agree that waiting is the hardest part, but we certainly don't want a rushed judgment. Look on the bright side. You didn't know you had a partially collapsed lobe, and now it's being addressed!

Best of luck, and hoping for a positive outcome!

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Replies to "As a Stage 4 lung cancer survivor, I'm starting to give talks on Lung Cancer Awareness..."

Thank you so much for this response. I read your response while in the room for 1 hour waiting for my radioactivity to be ready while waiting for the PetScan and needed this in that very moment.

I’m so glad you are a stage 4 survivor!

What’s concerning me a bit is I know there is inflammation in my chest, it’s still burning and tender on the left side. I have to pray that whoever is analyzing the scan can differentiate between inflammation and anything else. I peeked at the scan images on the monitor on my way out, I saw bright yellow areas but of course I have no idea what I was looking at, it was just a quick glance. I just have to pray that’s inflammation.

Thank you again!!