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How do you diagnose myasthenia gravis?
Autoimmune Diseases | Last Active: Feb 28 7:26am | Replies (36)Comment receiving replies
I was diagnosed in late 2015 with achr positive refractive myasthenia. I know that lab results are not definitive and the teaching hospital I was in did a test ( don’t remember what it was called) where they used electrical shocks ( for lack of a better word) that finally confirmed diagnosis.I had a rough go of it for about six months but am stable now living my new normal. I get plasmapheresis every eight weeks and IVIG every four weeks. I have been crisis free since mid 2016.
Replies to "I was diagnosed in late 2015 with achr positive refractive myasthenia. I know that lab results..."
A member of my MG support group was on plasmapheresis. He found a neuorologist who knew MG and with proper medication, he no longer needs the very expensive, and difficult to get to a facility that provides this treatment. He has been stable since he started the recommended medication and is back to a 'normal' life. When he was getting frequent plasmapheresis, his symptoms were such that he could not drive, just stayed dependent on that treatment but never improved to a 'normal'. The medication he now takes eliminated the need for Plasmapheresis, IVig, and stabilized his MG. He is much happier not being dependent on plasmapheresis. This is the first case of MG that I have heard of being on such treatments as you are receiving for so long.
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Can you explain plasmaphoresis to me, as my Neuro doc has suggested I do it for my CIDP.
Honestly I’m not keen on having the line placed in my chest, afraid of an infection.