There is a FaceBook page for “Lobular Breast Cancer Alliance” and another one called “ILC Sisters: Lobular Breast Cancer Support & Evidence Based Information.” You might join those groups, there is a wealth of information from both professionals that treat LBC and women going through what you are experiencing. I also know that MD Anderson has a specialist in lobular breast cancer, Jason Mouabbi, perhaps you could get a second opinion there? I know sometimes they recommend treatment plan and allow you to receive your treatment closer to home.