← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Discussion
Comment receiving replies
@kim1234

Hi there, I have CIDP since 2009 it was in remission until 2015 when it flared up, had solu medrol iv for 5 dys and this relieved all symtoms until 2022 August when I experienced pain in my left upper legs initially going across to the right hand side. I have lost complete muscle tone in my left arm and have 60% in my right arm. I have been on 3 x solu medrol for 5 dys over a period of 4 months with no long term improvement. I am trying to motivate my medical aid to pay for the polygam which will also be over 5 dys. I am putting a lot of faith that this will give me a longer period without pain. I am very weak and have had a lot of side affects from the cortisone. At present I have not taken cortisone for 6 weeks. What I don't understand is why it has suddenly been so aggressive and progressing so fast......very scarey!!

Jump to this post


Replies to "Hi there, I have CIDP since 2009 it was in remission until 2015 when it flared..."

I'm sorry for your severe relapse. Did you have any of the Covid vaccines? They are linked to immune dysfunction and autoimmune-mediated nerve damage. The neurological symptoms typically peak about 8 months after vaccination. I developed sensory and motor peripheral neuropathy with some demyelination. My outstanding peripheral neurologist agrees the vaccine was the likely cause. I am slowly improving.