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DADS-M - anyone else with this diagnosis I’d love to hear from you
Neuropathy | Last Active: May 16 12:04pm | Replies (10)Comment receiving replies
@dorilyn you are going through a very tough time. I read about your type of neuropathy because I was researching Chronic Inflammatory Demyelinating Polyneuropathy. I believe my doctor should be doing more testing on me for a complete diagnosis because I feel like I have Chronic Inflammatory Demyelinating Polyneuropathy .
I understand the isolation and the frustration of not being understood. Whenever we have pain, aggravation and stress make it worse.
It’s great that you reached out of this Connect Group. I know you will have lots of support.
Blessings
Replies to "@dorilyn you are going through a very tough time. I read about your type of neuropathy..."
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There are so many variants of CIDP. It is possible you could have it. There are specific diagnostic tests that can be done that are pretty definitive. I finally got a good neurologist who said to me I don’t know what you have. But I promise you this I will find out. And she did, she ordered a lot of tests that were quite expensive and had to get special permission to have them done free in Canada, when they were finished, she gave me the definitive diagnosis of DADS-M. If you’re not happy with your doctor, you can get another opinion, and look up the tests that are normally done to diagnose CIDP, although they had to do extra ones to give me the diagnosis of DADS. Thank you so much for the support. I really appreciate it. I hope you find out soon What is really going on and get a definitive diagnosis. The good news is ordinary CIDP is usually treatable.
Blessings to you too. 🙏