My CSS is wide spread head to toe with a plethora of symptoms. So, I speak about the PRC from a full perspective however, some attend for isolated pain or a specific chronic condition affecting one area. Regarding my eye sensitivities, I had cornea transplants and cataract surgeries on both eyes which were successful in fixing my sight (AMEN) and I thought my heightened eye sensitivities would also be fixed but not. In fact, I believe surgeries furthered the upregulate of my CNS.

My visual triggers include - headaches, migraines, overuse of devices/electronics, overhead store (florescent) lights, car lights, grey days, black print on white paper, the sun, sudden transitions of light, light imbalances, too many things to look at albeit small print, a menu, book, or just looking back and forth in an isle or riding down the street sightseeing, lasers, movie theaters etc...

Mayo PRC taught me to quiet the storm by cutting fuel lines by using graded exposure to light, limiting eye use through moderation, using modifications that OT teaches, 20/20/20 rule, controlling stress, anxiety, depression, keeping physically active, scheduling days, omitting opioids and other meds, using distraction for the brain to relearn and refocus (neuroplasticity), diaphragmatic breathing, mindfulness, meditation, scheduling rest breaks, avoid push/crash cyles etc...

No two people or cases are the same. I understand how you feel about finding someone you can connect symptoms with to be sure of your next steps, but that' shard sometimes because we are all so individual. Here's a conversation about when I went to PRC and what I got out of it, plus more in general on CSS. You'll find other members as well that might help.

Mayo Pain Rehab: Signing off and my comeback afterwards -
https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/
Central Sensitization - please share your stories -
https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/
I can give you more links to read through, but we'll start here. Will you please let me know your thoughts? I'd also like to add that you can apply to the PRC program and see if you qualify. That way you can gauge more appropriately if they think they can help you then figure out the logistics.