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Trying to recover from a c. diff infection (Clostridium difficile)
Digestive Health | Last Active: Apr 11 12:22am | Replies (545)Comment receiving replies
I am having the same problem getting my gut somewhat normal after Cdiff. I relapsed 4 times after treatment. Mine was also caused by clindamycin given to me for a severe sinus infection. I took Flagyl first & got better for a few days. I was sent to a GI who put me on vancomycin. I thought I was better because I went 10 days seeming ok for 10 days after finishing 10 days of that. I was very sick that time & had to be taken to the hospital by ambulance. I couldn’t even stand. I got diarrhea at night on the Saturday before Christmas & had the diarrhea at least 40 times & couldn’t even get back to bed. My my husband called my son who came to try & help him get me to the ER. I was passing out & couldn’t stand so they couldn’t get me there safely. We called the Dr on call for my GI & he said call an ambulance immediately. As soon & they for here they started an IV & left immediately. My BP was very low but started up when the fluids started. The Er gave me Dificid. I did well with that & again I thought I was going to be ok. I went 32 days then another relapse. Out of other options I had an FMT. I had mine via endoscopy down through my stomach into my small intestine. My GI said if I relapse again he’ll do another one via colonoscopy. I’m 32 days post FMT. & my stools still aren’t normal. I either get constipated & have to take miralax for a couple of days, then I’ll have several BM’s a day. Not diarrhea, but soft small thin pieces. When I eat anything except soft foods I have problems. I’m about to start Florastor. I’ve been drinking Kefir & eating yogurt everyday. I’m just praying I don’t relapse again. My GI is going to test an another month unless I get sick again. Everyone I talk to that has had Cdiff says it destroys your gut very badly & it takes a long time to get to a normal. Some say a year or more. I’m depressed over this because I weigh 85 pounds after loosing 20 pounds. I am desperate to gain some weight. This is such a bad thing. I wish they could come up with something to help all of us. Also my I say I’m 71 & have heart issues also. I hope you can get help, but maybe you are going to have to be patient like they want me to & that’s so hard. I’m praying for you & all of us.
Replies to "I am having the same problem getting my gut somewhat normal after Cdiff. I relapsed 4..."
Hi Sandy. I’m accessing your last post as a starting point for my experience with c-diff. I am also in the colon cancer chat group. This is where I started after having a colon re-section surgery when my colonoscopy showed cancerous tissue. When I was healing at home, I started experiencing more pain/discomfort and bowel frequency. Then came that smell. Two months later, I tested positive for c-diff. I just finished my second round of vanco and I am feeling much better. Still have bowel issues, food sensitivity and gas. Last night I woke up to stomach acid in my throat. So, it’s been 3-4 months since my surgery and I am reading chats with the same symptoms as other chat members. My surgeon is no help and he is talking about referring me to a gastro specialist. I’m not willing to do that quit yet. I reported my c-diff to Risk Management in the hospital where I received my surgery and will not do anything until the investigation is over. How have faired since your last correspondence? Anything advise? Any helpful info? I would appreciate you or anyone responding to my situation. I guess I’m wondering if I will have a relapse and be dealing with c-diff (again) and a new antibiotic. Not sure how I feel about a bowel transplant, but I’m not totally against it either. Virgo1952
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Why are you waiting to start Florastor? I think the S. Boulardii has really helped me. Although my BM's are far from normal and I'm never constipated after my 4 bouts of Cdiff last year.