Hello,

I was diagnosed stage 4 June 2020 with mets to my bones, started on Kisqali and Anastrozole July 13. After 19 months I started to get pain in my breast, similar to when I was diagnosed. I told my oncologist that I thought the cancer was growing again and a scan showed that it was. I switched to Afinitor and Exemastane but had a bad rash and trouble breathing so was taken off after 6 weeks. I was then on Xeloda for 6 months, I didn't have any indication from my body on how it was doing but scans at 3 months then at 6 months showed it wasn't working and the cancer had progressed.

I was without treatment for 7 weeks while my oncologist tried to get me into this trial, and I started in the Tropion 01 trial November 1. Adjusting to side effects was a bit of a journey but now with the right combination of medication for constipation and nausea (which only happened day 4 and 5 post chemo which is every 3 weeks) things are very manageable.

I have no hair anywhere and have fatigue, but I do all the things I need to do around the house, I go to dragon boat practice twice a week, golf once a week, dinners and drinks with my hubby and our friends and weekends are busy with our 4 kids and 2 grandkids. I am not missing out on anything. Yes, I have to rest more and there have been challenges with chemo mouth sores but again, getting the right combination of medications for all side effects is giving me a very good quality of life!!!

Let me know if you have any other questions, happy to share.