← Return to NET symptoms despite follow-up lab work ok

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@terlato

I'm going through the same with the symptoms and no answers. All the test fine except for my Gastrin level was high. I'm 74 and every day is the same waking up sweating, nausea, forceful bowel movements, vomiting and eventually fainting! Only my Cardiologist (went because they thought it was my heart) thought it was Neuroendocrine- r/o GIST. My Endocrinologist was wonderful. She did every test possible to r/o hormonal. She encourages me to keep going. GI doctor was useless. My other doctors look at me like I have 3 heads! So I made an appointment in California for the Prenuvo Scan which picks up everything. Hopefully I will get some answers. Believe me I know how you feel and how discouraging it is with the doctors. If they had the symptoms they would understand better. I feel your anguish and I pray you get some answers and relief. Just don't give up! Keep going, no matter how many doctors you have to see and how many test need to be performed. You need to be your own advocate. I will post my results from my scan which is being done October 14th. Hang in there and do the best you can. My prayers and thoughts are with you and with everyone dealing with this.

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Replies to "I'm going through the same with the symptoms and no answers. All the test fine except..."

Those are the EXACT symptoms I am having. My heart goes out to everyone going thru this. I tell each of my MDs that the smartest thing I ever did was to join this Mayo Clinic support group because I see that I am not alone in dealing with this rare cancer, and it is the best website for information and referrals to additional websites for neuroendocrine cancer. It really is a lonely struggle, so we do need to be proactive in our care. Thank you and God bless.