← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@1sunny

No, the results came back un the under edge of what makes diagnosis definitive. My symptoms however are classic. I'm naturally a very limber person, and still, at 79 working a physical job. woke up not being able to raise my arms t even shoulder level and bending not fat enough at his to be able to reach knee level. Husband had to lift my legs in and out of bed. A long time friend's (retired scientist) sister had long covid and I called to ask about that. She told me I had PMR as she had been battling that over a year at that time. I offered my doc that info and he thought I was doing internet diagnosis until I explained that she was a a trained scientist and had been being treated for quite a while. He then consulted a rheumatologist, put me on prednisone and within an hour and a half I was feeling and moving well. it's been up and down, one flare while on meds, still on 7 mgs. Cannot seem to get down to 5 without flaring, glad I'm old less time for the term effects of meds! Just wish I were not so darned unreasonably hungry.

Jump to this post


Replies to "No, the results came back un the under edge of what makes diagnosis definitive. My symptoms..."

Yes. I think it is the experience that counts and we are losing a lot of experience in the medical field as people retire.
In my case, it came not only below the line but way below the line... yet both of my doctors had been working in the field for decades. My first deferred to the rheumatologist, who said that if wasn't PMR, we'd know it if the prednisone didn't work. I was put on a one-month pack; it started high and then decreased over the next 20 or 30 days. Then I was done and had no more trouble with it for 5 years. This time my test results had moved up and the one-month pack didn't work. So I'm working on establishing a decreasing prednisone dose now, but all is manageable.