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Younger than usual with severe osteoporosis

Osteoporosis & Bone Health | Last Active: Aug 21 6:28pm | Replies (55)

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@sisby

@hopefullibrarian
Hi! I just joined this forum because I am 51 and was recently diagnosed with Osteoporosis.My story is similar to yours in that I have done what I could to strengthen my bones and have a mother who was diagnosed with Osteoporosis in her 50’s. She is in her 80’s and has been okay.
My story: I knew I had low bone density and was checked last year for underlying causes but the doctor did not find any causes. I had another DEXA this July. My scores were: -2.6 Lumbar spine, -2.8 Femoral neck, -2.6 hip. My Trabecular Bone Score for regions L1-L4 is 1.211 which “indicates partial degradation of bone micro architecture.” I lost 9.4% in bone mineral density in my spine in just this last year despite doing recommended exercise. So, I barely know what this means because when I got the results I called my doctor who runs a bone clinic and was told I could not book an appointment because she is booked out. This led to a frustrating series of messages in my portal in which she told me to take a Bisphosphonate. I expressed concern at starting this medication at a relatively young age but never got an answer and have felt increasingly doomed. I am scheduled to see a different doctor who is an Endocrinologist this Friday. I joined this forum for support and to start to research my options.
Thank you @pedsnurse61 for the book recommendation. I just ordered it. I am feeling rather lost so grateful to have found this group. Also, thanks @artscaping for your comments. I don’t even know what Tymlos is but it gives me hope that there are effective treatments.

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Replies to "@hopefullibrarian Hi! I just joined this forum because I am 51 and was recently diagnosed with..."

I'm glad you found this group too.

Tymlos is one of three bone builders that you inject on a daily basis. The other two are Forteo and Evenity. As soon as you are ready, you can start researching doing some research to see if one of those choices might be helpful. I look forward to our Connect friendship.

May you have peace and contentment.
Chris

Are you sure that the most recent DexaScan is correct? Was it on the same machine? Something you should should discuss with

Hi @sisby,
I got to thinking about you recently, when I watched a YouTube video by Dr. Doug Lucas about the medical system's failure to diagnose osteoporosis before the age of 65.
What prompted you to have your first DEXA? Was it your family history, a fracture, or something else? I'm glad that you were, at least, diagnosed before it got into the severe range.
The statistics Dr. Doug provided are shocking, and disgraceful. Since being diagnosed, I've been angry at the medical system that failed me by not screening earlier. Dr. Doug's video left me feeling grateful that I was diagnosed at all.
How are you getting along? Did you start a treatment? More importantly, are you feeling more optomistic?

Dr. Doug's video: https://youtube.com/watch?v=OH9kxUvxK7M&si=ZCviYTPSh4Ox7vGe