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Looking for help and support- OJ (isoleucyl-TRna synthetase) AB
Autoimmune Diseases | Last Active: Sep 28, 2023 | Replies (13)Comment receiving replies
@ottomalynn Welcome to Mayo Clinic Connect! You’ve definitively come to the right place. I don’t know much about the syndrome you mentioned, but will try to find some members that do. Are you seeing doctors at a comprehensive medical center or university hospital? Local doctors are great but they sure don’t know all the strange diseases. Doctors at the medical centers/university hospitals are a step above, plus they have access to research.
Are your current doctors doing any further tests or starting treatment?
Will you check on one tomorrow and let me know what you learn?
Replies to "@ottomalynn Welcome to Mayo Clinic Connect! You’ve definitively come to the right place. I don’t know..."
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Thank you! I have been seeing specialists, but not from the best system.
I have been referred to UT Southwestern and have an appointment on the 10th of October. I am looking forward to a new set of eyes and doctors for help.
With all autoimmune diseases, there are other diseases that want to creep in and pile on top of what you have, which is also happening to me. Trying to stay active when possible and managing symptoms as best I can.
I would love to speak to others who may have this syndrome.
I find it helps to have as much support as possible!