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Looking for help and support- OJ (isoleucyl-TRna synthetase) AB

Autoimmune Diseases | Last Active: Sep 28, 2023 | Replies (13)
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@ottomalynn

The OJ antibody relates to ASS - antisynthetase syndrome. A very rare disease. My doctors have not even brought it up to me which is quite amazing. This syndrome does not talk about exertion issues, but it does mention all my symptoms except for the ILD (lung issues).

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Replies to "The OJ antibody relates to ASS - antisynthetase syndrome. A very rare disease. My doctors have..."
scolio | @scolio | Sep 27, 2023

Are you saying you have the ILD? I saw that mentioned here, and thought, no, that doesn't apply.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7881640/
very dense reading. I haven't read it, only skimmed the summary.

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Becky, Volunteer Mentor | @becsbuddy | Sep 27, 2023

@ottomalynn Welcome to Mayo Clinic Connect! You’ve definitively come to the right place. I don’t know much about the syndrome you mentioned, but will try to find some members that do. Are you seeing doctors at a comprehensive medical center or university hospital? Local doctors are great but they sure don’t know all the strange diseases. Doctors at the medical centers/university hospitals are a step above, plus they have access to research.
Are your current doctors doing any further tests or starting treatment?
Will you check on one tomorrow and let me know what you learn?

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