1. < Neuropathy

Intermittent dizziness?

Posted by robindancer5678 @robindancer5678, Sep 16, 2023

My diagnosis was in February 2023 and I still have lots of questions. There are some days and a week at a time where I am doing great and think I am on the mend. Then I have what appears to be a flareup? Is this normal? It’s almost as though somebody flipped a switch. Suddenly this week, I am dizzy and think I’m going to fall over, I have fluttering in my chest, get short of breath when walking. But no weakness and no numbness. Generally feel lousy. But the next week I could be fine. Is this normal? Particularly the dizziness.

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Ray Kemble | @ray666 | Sep 23, 2023
In reply to @robindancer5678 "Thanks to this discussion I have trying out the idea of not wearing my progressive lenses..." + (show)
@robindancer5678

Thanks to this discussion I have trying out the idea of not wearing my progressive lenses while walking. Much better!

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I haven't yet tried walking without my progressive lenses. I will try it today. Something as simple as that … is it possible?

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jeffrapp | @jeffrapp | Sep 23, 2023
In reply to @robindancer5678 "Thanks for helping me to distinguish dizziness from vertigo. It feels better to recognize that I..." + (show)
@robindancer5678

Thanks for helping me to distinguish dizziness from vertigo. It feels better to recognize that I don’t feel weak or like I am in danger of passing out and that the room moving is just vertigo.

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Good morning.
You say "just vertigo". If you haven't already done so, please discuss this with your doctors. There are several forms of vertigo with different causes and levels of morbidity. You should try to get a specific diagnosis.

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1 reply
tb01 | @tb01 | Sep 27, 2023
In reply to @julbpat "It’s nice to find a clan of fellow dizziness sufferers. Here is my meclizine report. Yesterday..." + (show)
@julbpat

It’s nice to find a clan of fellow dizziness sufferers.
Here is my meclizine report. Yesterday morning I took it before any signs of dizziness. I did fine. No dizziness developed, no groggy feeling.
However … I have dry mouth and eyes, part of the autonomic portion of my SFN. I use Restasis eye drops, and take pilocarpine 5 mg prn, usually 3 times/day. Yesterday I had not taken my pilocarpine. Within 15 minutes of the meclizine, my mouth was completely parched. I was trying to make a phone call, and my tongue felt like a piece of wood! I even bit my tongue. I had already had at least 24 oz/water, so not related to thirst. It just dried up that already dry mouth.
Today I will take the pilocarpine first, and have my dry mouth spray on hand.
There are other “ warnings” on the meclizine label, but I’m just really excited about this possible solution. I can go to 9 am church without staggering to my pew!

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Very sorry to hear that since it helps me so much. Maybe ck with your DR re allergies. T

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1 reply
tb01 | @tb01 | Sep 27, 2023
In reply to @jeffrapp "Good morning. You say "just vertigo". If you haven't already done so, please discuss this with..." + (show)
@jeffrapp

Good morning.
You say "just vertigo". If you haven't already done so, please discuss this with your doctors. There are several forms of vertigo with different causes and levels of morbidity. You should try to get a specific diagnosis.

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Agree here, having suffered with both at different times. There is a vast difference between vertigo and dizzy. Also agree with - ck with your DR for allergic reactions. T

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tb01 | @tb01 | Sep 27, 2023

Normal, no. Common reactions, yes. But ck with your Dr re allergic reactions with other meds you take. T

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julbpat | @julbpat | Sep 28, 2023
In reply to @tb01 "Very sorry to hear that since it helps me so much. Maybe ck with your DR..." + (show)
@tb01

Very sorry to hear that since it helps me so much. Maybe ck with your DR re allergies. T

Jump to this post

I have been playing with the dose. Instead of 25 mg, I take 50 mg, and add another 25 mg if I need it. This doesn’t resolve the fog and confusion, but the dizziness either doesn’t start, or goes away within 30 minutes or so. So it’s working!

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