← Return to White-Sutton syndrome
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Brain & Nervous System | Last Active: Sep 29, 2023 | Replies (29)
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Replies to "Hi Deb, I know this thread is old, but our three month old son was in..."
Welcome to Connect, @bethbrown604. I can't imagine how difficult this has been, both for your baby and yourselves.
Unfortunately, Deb has not posted since 2018 and I'm not sure if you will receive a response from her, but am hopeful someone else chimes in with their experience. I'm not familiar with the syndrome but found White-Sutton Syndrome Foundation which shares family stories, research and other helpful information:
White-Sutton Syndrome Foundation -
https://whitesutton.org
Beth, how is your son doing now? Are his symptoms being managed?