I never had a lot of coughing or sputum. When I started the Arikayce is when I was able to actually cough stuff up. I think it's a Good thing to be able to cough anything up. I honestly don't really think the blood is that uncommon because your lung is irritated. It could be irritation from the nebulizing treatments or from the infection itself. I coughed up a lot of blood one night, that's how I found out I had this infection. They saw a huge mass on the CT scan which was actually just an abscessed cavity, but initially everyone thought that was lung cancer. I was so scared.
I'm a little shocked as the how quickly the antibiotics worked for me, and then going on the nebulizer really push things over the edge. The Arikayce definitely works because 3 months ago I had this cavity and now it's resolved. I also had tons of nodules. They were actually really concerned because within a month I had formed dozens of new nodules and they said they never saw someone get that many new nodules and such a short period of time. They were a little bit scared. I was also starting to get the little nodules in my other lung. The nodules started to clear up with the antibiotics and that's about the time I went on the nebulizer. So, there's definitely hope! My cavity was large! 3.5"!! I never had any symptoms either, with a cavity that big in my lung you would think that I would be short on breath or something. But nothing!

Just keep taking the antibiotics everyday and nebulizing everyday. Keep doing what you're doing. And I also tried to take deep breaths throughout the day, especially if I was somewhere where it was fresh air, I would try to get that deep down in my lungs as much as possible. Not sure if it helped. But it sure did feel good. I didn't change a lot of other things in my life. However. I am really hoping that things stay cleared for a while now, like I said, I'm just going to continue taking all my antibiotics and nebulizing until I see my doctor. I'm sure that's what he will want me to do anyway for a while to make sure the next CT scanner too. Come back clear. You know how this Mac can hide!!! Haha

Just keep having a positive attitude! Things are going to get better.

Angela