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Updating about My Lanreotide Injections & CT Scan
Neuroendocrine Tumors (NETs) | Last Active: Jun 15 10:40am | Replies (61)Comment receiving replies
Do any of you have pain with NET liver metastasis? I’ve been living with them for 14 mos (3 chemo embolisations w limited results) and they’re starting to make their presence far more known the past 3 weeks. Next scan is in 5 days and I’m concerned they’re growing.
Just curious if it’s normal to have burning and occasional sharp pain. There is no NET support group yet at my hospital here in Switzerland.
Many thanks for any advice you might have.
Replies to "Do any of you have pain with NET liver metastasis? I’ve been living with them for..."
Actually I did not have symptoms prior to my diagnosis. My NETs was discovered just like most are by accident when testing for another issue it showed up. I had several MRIs after it was discovered and finally a biopsy which all took over 8 months before my diagnosis. There is no telling how long it had been growing & might not have been discovered if not by accident. Good luck with yours!
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I had my pancreatic cancer surgery in Mar 2020 and 5 months ago my scan showed new spots and one tumor on my liver. A few weeks later I did start having sharp pain, don't recall burning sensation, but the pain for sure, even wrapped around to my back. I've had 3 Lanreotide injections which are showing an improvement in my blood tests and no more pain. I get my next PET scan tomorrow and hoping for no new growth and followed with my next Lanreotide injection on Sat. My scans got moved from annual to every 6 months because the blood and urin tests results had doubled and some tripled