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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@trimomlewis

Why doesn’t your doctor try upping your prednisone? I’m not a doctor, but just curious. Every medication, including Tylenol, has side effects. Seems like is a decision on what works best vs side effects.

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Replies to "Why doesn’t your doctor try upping your prednisone? I’m not a doctor, but just curious. Every..."
lizward46 | @lizward46 | Sep 27, 2023

I was diagnosed with PMR in May and Dr started me on 20 mg of prednisone thinking I would have an immediate cessation of painful symptoms. When that didn’t happen she upped dose to 30 mg and pain was gone. We then began a very slow taper. I am now taking 8mg and tapering 1mg per month. Sometimes it may take a larger dose of prednisone to relieve the symptoms (everyone is different). I agree about taking too much Tylenol. It is not good for your liver. Of course I don’t want to be on prednisone forever but, so far, the slow steady taper seems to be working. Be patient and good luck. Liz Ward

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harelover | @harelover | Sep 27, 2023

I was on higher dose of Predisone but with not much improvement. My Rheumatologist thinks I should have had some response after 3 mos and is concerned about long-term use of steroids at that dose. I am worried about tapering off, but if I'm not getting the results that many on this forum have experienced from Predisone then perhaps an alternative medicine is in my future.
Has anyone here had a spontaneous remission without the use of therapeutic drugs?

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