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ANCA Vasculitis: Side effects of 60 mg of prednisone a day?

Autoimmune Diseases | Last Active: Oct 22, 2023 | Replies (30)
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@teach3foruyahoocom

I went from 100 to 60 after 8 days. Ooof! Went from sorta okay to back in bed. Couldn't do it! My doctor allowed me to go back up to 80. Yes, I am not myself...hard to concentrate, sleep, short term memory is really bad but I am just waiting for okay from insurance to start rituximab infusions. 😂 Funny, their comment is that it is not FDA approved. Not too smart, considering there is no FDA approved treatment! So, just keep advocating for yourself! I am getting better at it.😌

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Replies to "I went from 100 to 60 after 8 days. Ooof! Went from sorta okay to back..."
marilynredder2367 | @marilynredder2367 | Sep 28, 2023

Yes Actemra and it works really well and fast. On it years. On and off.

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Becky, Volunteer Mentor | @becsbuddy | Sep 28, 2023

@teach3foruyahoocom When I first started rituxan, i was also told that they wouldn’t cover it because it was being used off label. The doctor called insurance/ manufacturer and explained that it was the only drug that worked, so they gave their OK. Hope your insurance says OK!

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