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Is this RLS (restless leg syndrome)?

Autoimmune Diseases | Last Active: Nov 17 8:56pm | Replies (107)

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@degarden_girl

Wow, you have had an awful time with RLS. I started off taking 4000 IUs of Vit D3 and then reduced to 3000 and now am at 2000. My doc didn't see any problem with me taking 4000 so maybe your doc would find that is OK for you to try. And then maybe try taking it around 5 PM to see if it calms the RLS. I do wonder if your sleep medication might be triggering the RLS. I too have found the whole issue is exacerbated by aging (I'm 78). My mom had it and had to stand up to watch TV. We didn't know about Vit D3 then.

I wish you good luck. RLS is an awful disease with such a silly name.

Donna

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Replies to "Wow, you have had an awful time with RLS. I started off taking 4000 IUs of..."

LOL I've stood to watch TV and even read the paper over the years...I've tried different timing of the supplements, and it didn't seem to help. Sometimes heat helps, support stockings, Tramadol, but nothing so far works every day, until the last month when I tried CBD. I have read the Trazadone could be a trigger but have tried to stop 2 different times, once 4 weeks and then 6 weeks recently. Both times I didn't notice any difference in the RLS, but I was not sleeping. Even after 6 weeks I was only sleeping a few hours a night so was always tired, which just makes my RLS start earlier in the day. If I can sleep 6 or 7 hours, I'm great, but without the trazadone I only sleep about 4 hours. I was given Trazadone in 1998 when after surgery when my doctor discovered I only slept a few hours a night. Taking 150mg I can sleep 6 maybe 7 hours, but not soundly...it must be hereditary as my older brother only sleeps about 4 hours a night, but unfortunately nothing has helped him sleep better.