I can totally relate! First of all, I am sorry you are going through this. Here is what I learned starting a year ago. My cancer, a NET tumor in the breast, is so rare that none of my practitioners or specialists I consulted had ever seen it clinically. It has a poor prognosis. I felt my doctors had zero interest in me as a person. (With the exception of a good PCP who already knew me). So, OK. I had to look outside of cancer world for support. Luckily I have friends, family, a PT, a therapist, an interfaith group, and more. All of my usual supports kept on helping me. But frankly I've avoided imagining I can get emotional support from within the medical profession. At first I was disappointed and kind of keeping score and then I just gave up. I'd say I regard my doctors like car mechanics except I've got a nice mechanic who frankly seems to care holistically more about my car than the medical system cares about me! I don't think these practitioners are bad doctors or bad people or anything like that. I would just suggest getting external support, like this great chat.

I can totally relate . Since my husband’s rare cancer came back 27 years later ….. After receiving excellent care , but a piece of cancer is still inside his skull , that could
not be removed . As we wait between scans etc…… doctors have said to me “Why do you look so sad “. Most have no bedside manner at all! I totally agree with you !