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Is this RLS (restless leg syndrome)?

Autoimmune Diseases | Last Active: Nov 17 8:56pm | Replies (107)

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@degarden_girl

I have RLS and PILM which are controlled by 2000 IU of Vitamin D3 every night for the RLS and as needed, 200 mg gabapentin at night. Medications such as Benadryl and Ambien can trigger RLS and PILM -- perhaps other medications as well. For RLS, for me, it is an uncontrollable urge to move the limb. For PILM, the limb just moves, such as kicks out -- not an urge but an involuntary movement.

I don't know if your symptoms are connected to either RLS or PILM. Maybe a neurologist could shed some light on this for you.

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Replies to "I have RLS and PILM which are controlled by 2000 IU of Vitamin D3 every night..."

Hi, it's RLS for me and cannot take gabapentin and take extra Vitamin D3 2000 IU, but take in the morning. My RLS starts (well anytime) but mostly around 5 or 6 pm. and why I was taking in morning but wonder if I should try at night. I've talked to several neurologist over the years and was told try magnesium, vitamin D, B and Iron all of which I have. This last one had bloodwork and CT for any spine issues, but he was looking more for cause of numb feet that happened after some major back surgery. But all fine....I do take trazadone to help me sleep and even then, can only sleep maybe 7 hours but wonder if that is not making it worse. Although all this started when I was in my 20's when a doctor first said I had RLS, but who had ever heard of RLS back then. Not even sure what I went to the doctor for, but he said RLS. In my 40's it was more often and once in a while my arm. Now in my 60's is every day...blah I just want to eat dinner, watch TV or read and relax and cannot. sometimes it's 8 or 9 before it gets bad. I take tramadol, use heat, support stockings etc... sometimes it helps and sometimes not...lol