New to CRPS complex regional paint syndrome: want to talk

Posted by triumph2020 @triumph2020, Jul 30, 2021

Hello, I am new to this, don't know what to expect. I just be needing someone to talk with that's maybe going thru the same thing as I am.

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Nutcracker syndrome, chronic pain

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@willows

Try and get referred to a rehabilitation specialist. Medical doctor called a physiatrist. Can’t help with any suggestions because mine was in Ottawa and at no cost to me because of our universal coverage, and I guess the cost might be considerable if your insurance won’t cover it. Hope that is not the case for you. Good luck.

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I also live in Canada, and when I was first diagnosed incorrectly and was complaining of severe pain. My doctor and neurologist said it was all in my mind and I needed to see a psychiatrist. Being desperate at the time I did see the psychiatrist and he said I probably am depressed, but it’s very likely due to the fact that I am in constant pain. all I can say is keep searching change doctors although it’s hard to do in Canada now. Eventually I got a correct diagnosis of. DADS-M. As a consequence, I am now given pain medication, which makes survival on a day-to-day basis possible. I suggest you try to get a referral to a neurologist in another city. Hamilton’s McMaster, university, has a very good neurology department. It was there I got a correct diagnosis with a wonderful Neurologist. I am still in pain but at least I know what’s wrong with me now. I hope you get help soon. Sending love and hugs.

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