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Fire, burning sensation

Posted by julietmoore @julietmoore, Sep 22, 2023

My scalp, face , parts of my body always feels like I am on fire, not burning pain but feels more like my skin has touch a hot stove. I have had an MRI done,waiting for nerve test done in a couple of weeks. Currently talking gabapentin but not helping at all.

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julietmoore | @julietmoore | Sep 25, 2023
In reply to @katcollins "I also have the same symptoms. I have been diagnosed with fibromyalgia, migraine associated vertigo, and..." + (show)
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I also have the same symptoms. I have been diagnosed with fibromyalgia, migraine associated vertigo, and also functional movement disorder. I’m not sure with is causing it but Gabapentin, cymbalta, nurtec, b12, and ferrous sulphate are my saving grace. Also daily yoga and nervous system regulation breathing and mindfulness. Best of luck!

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Thank you for taking the time to reply. Still waiting for my EMG testing next week and will see what happens.
Happy they found something that works for you. Stay blessed 🙏

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miketraff5 | @miketraff5 | Jul 5 10:17am

I feel like I fell asleep on the beach and got a bad sun burn, but I don't even go out in the sun and the results are as I did. Everyday my skin peels very dry skin burning feeling all by not going in the sun. I would not wish this on my worse enemy. Nothing seems to help steroid shot any creams nothing. My hands are swollen peeling my neck burns and legs. Also, I itch to the point I'm I bleed. Need help has anybody else experience these symptoms.

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jab29 | @jab29 | Jul 6 10:29am
In reply to @miketraff5 "I feel like I fell asleep on the beach and got a bad sun burn, but..." + (show)
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I feel like I fell asleep on the beach and got a bad sun burn, but I don't even go out in the sun and the results are as I did. Everyday my skin peels very dry skin burning feeling all by not going in the sun. I would not wish this on my worse enemy. Nothing seems to help steroid shot any creams nothing. My hands are swollen peeling my neck burns and legs. Also, I itch to the point I'm I bleed. Need help has anybody else experience these symptoms.

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Have you been assessed by your doctors to rule out . Ask about complex regional pain syndrome . Yes experience similar working with neurologist don’t t know cause either . Gabapentin has helped along with stellette ganglion nerve blocks. I suffered failed ACD F surgery with other complications. I so much want to send a hug to you.

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jandy88us | @jandy88us | Jul 6 3:24pm

Hi Juliet,
First of all, I am so sorry you’re going through this!
I’ve been having burning inside my head, my mouth, and through out my body for the last 5 years.
I have been diagnosed with Small Fiber Neuropathy within the last 2 years. I have been on Gabapentin and then Lyrica with no relief! I just started Cymbalta the beginning of this week. I’m not feeling any relief yet but I’m hopeful!
I pray you’re able to find something that will help!

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jomammawu | @jomammawu | Jul 14 9:00am

Has anyone considerd CRPS? Complex Reginal Pain Syndrome also nicknamed the on fire or suicide disease. K have lived with this for about 6 years now. I came here looking for answers but not even a support group. It is rare..

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Colleen Young, Connect Director | @colleenyoung | Jul 14 10:59am
In reply to @jomammawu "Has anyone considerd CRPS? Complex Reginal Pain Syndrome also nicknamed the on fire or suicide disease...." + (show)
Profile picture for jomammawu @jomammawu

Has anyone considerd CRPS? Complex Reginal Pain Syndrome also nicknamed the on fire or suicide disease. K have lived with this for about 6 years now. I came here looking for answers but not even a support group. It is rare..

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@jomammawu, there are many discussions in the Chronic Pain and Neuropathy groups related to Complex Regional Pain Syndrome. See here to join discussions relevant to you:

CRPS: https://connect.mayoclinic.org/search/discussions/?search=CRPS
Complex Regional Pain Syndrome https://connect.mayoclinic.org/search/discussions/?search=Complex%20Regional%20Pain%20Syndrome

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riskadee | @riskadee | Aug 20 3:00pm

I’ve been experiencing the same symptoms for about two years. Most medications didn’t really help. About 10 months ago, I started a Brain Retraining program, and since then my symptoms have gradually improved. I’m still doing the program now, which includes breathing exercises, nervous system regulation, and mindfulness. Hopefully, we’ll be fully healthy again soon.

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riskadee | @riskadee | Aug 20 3:04pm
In reply to @jandy88us "Hi Juliet, First of all, I am so sorry you’re going through this! I’ve been having..." + (show)
Profile picture for jandy88us @jandy88us

Hi Juliet,
First of all, I am so sorry you’re going through this!
I’ve been having burning inside my head, my mouth, and through out my body for the last 5 years.
I have been diagnosed with Small Fiber Neuropathy within the last 2 years. I have been on Gabapentin and then Lyrica with no relief! I just started Cymbalta the beginning of this week. I’m not feeling any relief yet but I’m hopeful!
I pray you’re able to find something that will help!

Jump to this post

I’ve been experiencing the same symptoms for about two years. Most medications didn’t really help me. About 10 months ago, I started a Brain Retraining program, and since then my symptoms have gradually improved. I’m still doing the program now, which includes breathing exercises, nervous system regulation, and mindfulness. The program guided me remote by online. So I just follow them from home.
Hopefully, we’ll both be fully healthy again soon.

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jandy88us | @jandy88us | Aug 21 5:01pm
In reply to @lacy2 "Have commented before and still the same... stared June 2022 on and off burning face mainly..." + (show)
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Have commented before and still the same... stared June 2022 on and off burning face mainly cheeks but then neck etc., sometimes red sometimes pink and sometimes my normal pale face but burning hot yes as if on fire. No tests done on me. Dermatologist said not his field. Neurologist said not his field. Guess I am all alone in a field. Over a year and now mainly at night as right now 8pm, last several hours. Creams etc. Were suggested as a trial basis but its not skin so why cream. I was putting small cold pads on face during night. But kept falling off but helped. Now I just go with the flow and put up with it but quite painful. I started taking selfies but no one seemed interested. I started a binder about he different things it could be but again, no one wants to look at it. Best of luck to you, hope find out what it is.

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Hi there,

How are you feeling now?
Have there been any changes?

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