Connect
← Return to Struggling with making an osteoporosis treatment decision
Discussion
Struggling with making an osteoporosis treatment decision
Osteoporosis & Bone Health | Last Active: Jun 4 11:43pm | Replies (661)Comment receiving replies
within 48 hrs i was in severe pain could not really walk or open my hands went to my dr he gave me a steroid pac i took the first line and by the next day all the pain was gone so i thought. the minute i was off the steroids the pain came back.it was my whole body a burning deep penetrating pain that i couldn't sleep walking and moving was very painful my whole body just ached. i was put on 20 mg prednisone and that helped somewhat but i was never without pain. as the months went on and the shot was waning the pain got better and then i was told i had ra never had any o =f this before the shot so yes i do believe the shot did alot of damage and i beliee it is still doing it. do not take the prolia shot 6 wks after having the shot i had my first compresion fracture but did not know it until it was pretty much healed. very painful then my 6 mos with prolia was up on may and this past auguat i had another compression frxture. they say that happens whwn you stop the prolia and i only had 1 shot. i am so angry with myself gor not checking it out i trusted my dr and now will suffer with side effects for the rest of my life such as fractures i can only say the fda did not vet this drug properly and drs are giving it out and know nothing about it ir how bad it can be nope this helps
Replies to "within 48 hrs i was in severe pain could not really walk or open my hands..."
I have been taken alendronate for a bit over a year and started a new year with not much success Now I am not under the boarder line of osteo but I am osteo I need to check into my numbers more now that I am a bit paranoid of all these new meds to building bones. I asked my family doctor about that needle to help build bones and she recommended I speak to a specialist which I did. She was asking me all these questions almost like she had no information in front of her about my pass. I felt a bit uncomfortable but right away suggested prolia. I was excited at first to be starting this new bone builder till I picked up my injection at my pharmacy and it was not refrigerated right away when I got home for about 5 hrs . I started to read up on it if it was not refrigerated what can happen then I came across this site and now I am totally freaked out about even taking it. I have it in the fridge and I will not be taking it till I sit down again with this specialist and I request my findings on my last scan where I stand. Maybe I am not bad enough to do this and try an alternative to what I was on or could still be on and more. I am 68 and pretty active and I cannot afford these side effects for life. Maybe reading more of this will clarify my thinking of what avenue to take. So far I am very torn on all these treatments I am thinking of risking not taking anything and dealing with what ever happens and hope I never break a bone then to take something and having fractures in my back over nothing. Scare out of my mind here
i kust want to add after taking the prolia shot and being iin so much pain my dr ordered additional bllodwork which showed i had 2 markers for ra no symptoms or physical deformity but i had these markers and was tld i have ra and am being treated for such. i would like to know if only the 2 markers are enough for a diagnsis of raa. also when i asked my dr could the prolia have caused he said possibly so i guess i traded one pain for another. has anyone been diagnosed with ra and if so how because i am 80 yrs old and never had any symptoms of ra befure the prolia imcident also i was diagnosed in 2008 withosteoarthritis not ra right now am very confused
Connect
Your experience sounds terrible. I'm so sorry about the pain you've gone through. My endo Dr minimized size effects, of course. Between my scans in 2019 and 2021, my numbers stayed the same. My next scan is in a couple months and I hope I am still stable and not worse.