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Best doc to follow up on lymphedema?

Breast Cancer | Last Active: Sep 28, 2023 | Replies (12)

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@katrina123

Some people can develop lymphedema even when lymph nodes are not removed if the lymphatic system in the skin is injured from extensive surgery or from radiation treatments.

I am one of those people. I have breast lymphedema and I did not have any lymph nodes removed.

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Replies to "Some people can develop lymphedema even when lymph nodes are not removed if the lymphatic system..."

I had 3 lymph nodes removed when I had a mastectomy. 3 years ago. Since then no lymphedema. I have had a hip replacement and carpal tunnel surgery since. Doctors know not to draw blood or use a pressure cup for blood pressure on my side of my mastectomy. Everything on the left. I consider myself very lucky. Even though I was diagnosed a year ago with mas. Stage 4 my pet scans show a decrease in any cancer. Yea, I was on veranizo(not sure of correctly spelling) for 40 days and had to go off because of blood clots. I am am on exemestane that I take at night to avoid any side effects. Also on eliquis for blood thinner to avoid any further blood clots.
God has been so go to me .
I will never go on any chemo again even if cancer activates again because it was horrible the first time. I am trying to live my best life, and share my experience of this journey to maybe give help to anyone who
Is having difficulty emotionally or physically. Yes it is a lonely experience . This chat group has been a life saver for me,

Do you use a Swell Spot? I find it astonishingly helpful in managing my breast lymphedema, and it couldn't be easier.