Fire, burning sensation

Posted by julietmoore @julietmoore, Sep 22, 2023

My scalp, face , parts of my body always feels like I am on fire, not burning pain but feels more like my skin has touch a hot stove. I have had an MRI done,waiting for nerve test done in a couple of weeks. Currently talking gabapentin but not helping at all.

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Have commented before and still the same... stared June 2022 on and off burning face mainly cheeks but then neck etc., sometimes red sometimes pink and sometimes my normal pale face but burning hot yes as if on fire. No tests done on me. Dermatologist said not his field. Neurologist said not his field. Guess I am all alone in a field. Over a year and now mainly at night as right now 8pm, last several hours. Creams etc. Were suggested as a trial basis but its not skin so why cream. I was putting small cold pads on face during night. But kept falling off but helped. Now I just go with the flow and put up with it but quite painful. I started taking selfies but no one seemed interested. I started a binder about he different things it could be but again, no one wants to look at it. Best of luck to you, hope find out what it is.

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@lacy2

Have commented before and still the same... stared June 2022 on and off burning face mainly cheeks but then neck etc., sometimes red sometimes pink and sometimes my normal pale face but burning hot yes as if on fire. No tests done on me. Dermatologist said not his field. Neurologist said not his field. Guess I am all alone in a field. Over a year and now mainly at night as right now 8pm, last several hours. Creams etc. Were suggested as a trial basis but its not skin so why cream. I was putting small cold pads on face during night. But kept falling off but helped. Now I just go with the flow and put up with it but quite painful. I started taking selfies but no one seemed interested. I started a binder about he different things it could be but again, no one wants to look at it. Best of luck to you, hope find out what it is.

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Thanks

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I have had these burning sensation and now they say Fibromyalgia. They say that it is nerve pain. Right now I take Cymbalta and Gabapentin.
Good luck to you.

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@dream1649

I have had these burning sensation and now they say Fibromyalgia. They say that it is nerve pain. Right now I take Cymbalta and Gabapentin.
Good luck to you.

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Thank you

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I rather doubt what I have to say will help, but it helped me. I would have burning sensations on the ends of my big toes periodically where it felt like they were on fire. I saw an Integrated Medicine doctor regarding other issues (immune related) and she suggested I start taking a Lemon Balm liquid supplement. I did and then realized I no longer had the burning sensation. I ran out of it and didn’t take it for several weeks and the burning sensation came back. I started back on the supplement and haven’t had the burning sensation since. I researched Lemon Balm and it does have an impact on the neurological system. For what it’s worth!

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@ritabtripp

I rather doubt what I have to say will help, but it helped me. I would have burning sensations on the ends of my big toes periodically where it felt like they were on fire. I saw an Integrated Medicine doctor regarding other issues (immune related) and she suggested I start taking a Lemon Balm liquid supplement. I did and then realized I no longer had the burning sensation. I ran out of it and didn’t take it for several weeks and the burning sensation came back. I started back on the supplement and haven’t had the burning sensation since. I researched Lemon Balm and it does have an impact on the neurological system. For what it’s worth!

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Thank you for taking the time to reply. For what I am going through I will try anything.
I am glad you are doing well.

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Check out post herpetic neuralgia

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Sorry, I meant trigeminal neuralgia

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@lukirk

Check out post herpetic neuralgia

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I’m waiting to see a doctor to treat it, but fairly certain I have Elsberg syndrome.

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@dream1649

I have had these burning sensation and now they say Fibromyalgia. They say that it is nerve pain. Right now I take Cymbalta and Gabapentin.
Good luck to you.

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I also have the same symptoms. I have been diagnosed with fibromyalgia, migraine associated vertigo, and also functional movement disorder. I’m not sure with is causing it but Gabapentin, cymbalta, nurtec, b12, and ferrous sulphate are my saving grace. Also daily yoga and nervous system regulation breathing and mindfulness. Best of luck!

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