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Best doc to follow up on lymphedema?

Breast Cancer | Last Active: Sep 28, 2023 | Replies (12)
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@kensiejames

Hey there!
Your surgical oncologist is the best physician to see about this. You had no lymph nodes involved, but did they remove them? If you had no lymp nodes removed you shouldn’t have lymphedema.
I had a lumpectomy also for DCIS . I am 17 years out. I had lymph nodes removed. The only things that helped manage the swelling was weight loss, and a compression stocking for the arm.
Regular massages are very important.

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Replies to "Hey there! Your surgical oncologist is the best physician to see about this. You had no..."
catbuddy | @catbuddy | Sep 25, 2023

Thank you for responding. I had no involvement of lymph nodes, so none removed. However I had 16 radiation treatments and damage to lymph nodes is a known side effect. Good to know that weight loss may help (sigh- I can’t seem to escape that!) and about compression garments. I’m actually trying to find the best one for that area.
Thanks again for responding.

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katrina123 | @katrina123 | Sep 25, 2023

Some people can develop lymphedema even when lymph nodes are not removed if the lymphatic system in the skin is injured from extensive surgery or from radiation treatments.

I am one of those people. I have breast lymphedema and I did not have any lymph nodes removed.

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