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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@arniecollins

Just this past Friday after my EMG, my doctor said my PN was severe/end stage. I was told to always sit in the shower and to always use a cane or walker. I had already been doing this for several years. I will add that I have had this for 13 and originally was just numb toes and balls of my feet. It slowly progressed to my entire feet and up my shins to my knees. Luckily, I have no pain, only weird numbness. But I can feel heat, cold, and pain.
I highly recommend a shower stool to not fall.
Good luck with your medical issues.

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Replies to "Just this past Friday after my EMG, my doctor said my PN was severe/end stage. I..."

Thank you. Sincerely. It looks like I’m going to learn more about my condition through this site than from my doctor. He was very close to negligent in not listening to me about my symptoms. My son was born with hypotonic cerebral palsy, requiring braces for his ankles & lower legs. I say this because I used my experience with him to advocate for myself. After nearly several years of pestering and outright making a complete nuisance of myself the neurologist finally wrote a script for leg braces. They cover from the shin to just about the balls of my feet. I’ll still advocate for myself until I get the proper ankle articulations, but they keep me upright. Are think enough to prevent injury and help with my balance.
They are a bit uncomfortable in certain areas, but my back doesn’t hurt as much because my posture is corrected by the support. They also prevent my ankles from twisting/collapsing. Probably one of the first signs I had PN, it had stopped hurting when I should have sprained an ankle.
Right now I’m in a housing situation that doesn’t have a safety bar in the shower, & the removable ones I purchased won’t attach to the tile. (I hate subsidized housing.)