1. < Neuroendocrine Tumors (NETs)

Follow up surgery for PNET

Posted by milagro45pr @milagro45pr, Sep 22, 2023

I had a distal pancreatomy with splenectomy on March 10th for NET in pancreas. All was well. Good recovery.
Went on Monday for my 6months post op Ct and now they saw a 2.2. X 5.3 x 2.1 enhancing lobulated lesión inferior to the gastric body. Now that’s big enough how in the world did they miss it when they went in for surgery or my question was it small and it grew fast. Recommendation of PET CT with Ga -68 to see what it is. I’m scared.

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milagro45pr | @milagro45pr | Sep 24, 2023

No. cm.
2.2 x 5.3 x 2.1 cm

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milagro45pr | @milagro45pr | Sep 24, 2023

The first time they found tumor in pancreas they saw it in th ct scan and confirmed with and MRI. No other testing was done. This time they found this tumor inferior to gastric body at CT follow up scan after 6 months from surgery. There was nothing there and now 6 months later they found this in the lymph nodes inferior to gastric body.

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1 reply
Turkey | @tomrennie | Sep 24, 2023
In reply to @milagro45pr "The first time they found tumor in pancreas they saw it in th ct scan and..." + (show)
@milagro45pr

The first time they found tumor in pancreas they saw it in th ct scan and confirmed with and MRI. No other testing was done. This time they found this tumor inferior to gastric body at CT follow up scan after 6 months from surgery. There was nothing there and now 6 months later they found this in the lymph nodes inferior to gastric body.

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And how do you know the new tumor is a NET?

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2 replies
Turkey | @tomrennie | Sep 24, 2023
In reply to @tomrennie "And how do you know the new tumor is a NET?" + (show)
@tomrennie

And how do you know the new tumor is a NET?

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And the old one for that matter?

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1 reply
milagro45pr | @milagro45pr | Sep 24, 2023
In reply to @tomrennie "And how do you know the new tumor is a NET?" + (show)
@tomrennie

And how do you know the new tumor is a NET?

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I don’t know it’s a NET. Never said that

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milagro45pr | @milagro45pr | Sep 24, 2023
In reply to @tomrennie "And the old one for that matter?" + (show)
@tomrennie

And the old one for that matter?

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The one that was in the portion of the pancreas pathology repor says it was a NET

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1 reply
Turkey | @tomrennie | Sep 24, 2023
In reply to @milagro45pr "The one that was in the portion of the pancreas pathology repor says it was a..." + (show)
@milagro45pr

The one that was in the portion of the pancreas pathology repor says it was a NET

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I am just trying to put the pieces of your puzzle together. They are not fitting together for me. Maybe it is because I never had surgery or an MRI. I went from GA-68 scan to biopsy then started chemo in about a week.

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1 reply
Turkey | @tomrennie | Sep 24, 2023
In reply to @tomrennie "I am just trying to put the pieces of your puzzle together. They are not fitting..." + (show)
@tomrennie

I am just trying to put the pieces of your puzzle together. They are not fitting together for me. Maybe it is because I never had surgery or an MRI. I went from GA-68 scan to biopsy then started chemo in about a week.

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That was 8/22 when I got diagnosed with a pancreatic NET that spread to my liver. I was on CAPTEM for a year and now I just take cap (capecitabine).

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