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Esophageal Lichen Planus

Autoimmune Diseases | Last Active: Oct 11 2:53pm | Replies (108)

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@sadea0208

Hi,
I have ELP which has spread to my mouth and skin. ELP is a disease where the immune system attacks the mucus membranes in the body. ELP is an extremely rare disease with less than 40 cases in the country in the medical journals. The specialists I have seen have never had a patient with ELP. They don't even know of a specialist in Seattle just south of us. Presently there's not a cure for LP, OLP, ELP etc..
In all of the research I have done on these diseases I have not read any information on OLP leading to ELP.
I began having unusual symptoms in my esophagus before it spread to my mouth and skin. I ignored the symptoms in my esophagus
If you're concerned about possibly having ELP I suggest you see a Gastroenterologist.
Take care!❤️

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Replies to "Hi, I have ELP which has spread to my mouth and skin. ELP is a disease..."

Hi ! I have had ELP for the past year Did you ever find a good doc that knows about this ? I’m from Seattle also
Thank you and hope you are well.