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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@pkh3381

Thank you for your response. I was Dx'd with PN years ago, and it has gradually gotten worse, but it is to the point that it really bothers me. I have the numbness all the time, so yes, I have numbness with the color. But, I only notice the color changes in the shower. That could be because I am standing on my own [w/o cane] for probably the longest period of time that I stand? I have the pins and needles in my feet and a gritty feeling on the bottom of my feet when I walk. My PN is up to just under my knees and there is like a "line" just under my knees, where the PN is up to, and the skin below that line is much whiter and has a completely different feel than the skin elsewhere on my body. My calves and feet are nearly always swollen, but at times my ankles and feet are extremely swollen. [Almost like a cardia involvement] I am up to 1800 -2300mg of Gabapentin a day and take 2 x-strength Tylenol with each dose of Gaba. The relief is not long, but I cannot go over 2300 mg Gaba because I also have an involuntary neurological body movement and it causes me to fall. [I'm a MESS!😉] I haven't found any topicals that help. Thanks again for your empathy and offer to help. I appreciate that very much. I wish I could get a Dr to take as much interest as you! 😊
P

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Replies to "Thank you for your response. I was Dx'd with PN years ago, and it has gradually..."

Have you tried LDN Check out websites low dose naltrexone

Have you ever been to a vascular surgeon to check out the circulation in your calves? On a suggestion I did and am so happy to report that my pain in my legs is Not from my PN. An angiogram is scheduled & hopefully the leg issue will be a thing of the past. Good luck to you & everyone trying to rid themselves of this relentless issue of PN.

Start doing research on low dose Naltrexone. I think it is helping some with NP. If it looks promising, let me know.
Lou