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DiscussionCarcinoid syndrome; NET not found
Neuroendocrine Tumors (NETs) | Last Active: Apr 22 1:06pm | Replies (16)Comment receiving replies
Replies to "Hi Teralto, Wanted to wish you luck in finding answers to your symptoms. I have read..."
Hi, Thank you. Yes I have had ALL the test and scans and ultrasounds and they look at me and say there is nothing. But, the G-68 Pet Scan is not available for me in Las Vegas. And I was told by my Endocrinologist and Insurance Company will would take months before it might be approved! I read even that scan can miss it! They don't really take me seriously. But, I'm the one suffering with crazy symptoms. A friend of mine, who is a retired surgeon, is the only one who knows what I'm going through. He told me in all of his 30 years of practice he only came across one Carcinoid Tumor which was very difficult to find. He is also encouraging me to go further. I'm very persistent when it comes to my health. We will see in a few weeks how everything goes. Thank you and everyone for your encouragement and prayers.