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← Return to Follow up surgery for PNET
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Neuroendocrine Tumors (NETs) | Last Active: Sep 24, 2023 | Replies (18)
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When they found the NET in the pancreas the biopsies it and told me I could wait it off or have it removed. They didn’t offer PET scan cause according to them they’d don’t think I needed it.
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In our case the PET scan was done twice, once after 6 month check during chemo, and before surgery, 6 months later before surgery. I’m concerned from your doctor’s comment that they didn’t think it was needed. In our case it is the main test to see where exactly the NET is before our decision points on which direction to take. Do you have a multi- disciplinary team including a NET specialist? But every case is different, we are not doctors, but just offering our experience in our cases with NET. 🙏