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Ileostomy reversal coming up - what will be my new normal?
Colorectal Cancer | Last Active: May 14 8:54pm | Replies (59)Comment receiving replies
<p>Diet: I have NO idea what to eat or what to expect after the reversal. Any tips or suggestions for immediately after and the coming weeks? Any supplements or additives that worked to gain regularity?<br />Donating ostomy supplies: I have a good amount of supplies never used - pouches, paste, powder, spray, sachets, belts, etc. Has anyone donated their leftover supplies? Any ideas where I may? (I’m afraid the hospital will just throw them out if I bring them with me.)<br />Thanks so much in advance. I’m nervous and excited at the same time. No idea what my new normal will be after 6 months!</p>
Replies to "Diet: I have NO idea what to eat or what to expect after the reversal. Any..."
You are right, Mayo cannot accept your extra supplies but here is a source that will welcome them and re-distribute.
https://phoenixostomy.org/
If you are not in Phoenix, give them a call and ask for their equivalent in your area.
Congratulations on your reversal!
You can donate supplies to Friends of Ostomy Worldwide. They will send you a mailer to ship for free.
I have donated supplies to them several times in the past.
I agree that would be great to have some place to donate meds.
I have a couple of Rinvoq 15 mg bottles that I got shortly before my ileostomy. My pharmacist suggested posting on Facebook, but I don't want to handle this publicly. I am still waiting to hear back from the local township Senior Center since apprently sometimes they can help.
When my dog died, the regional emergency vet center accepted all of his unused meds, including seizure drugs such as Keppra, Zonisamide and even phenobarbital. Wish I could find something similar for my drugs.
SOther suggestions like Worldwide Friends of Ostomy sound great.
Thought I would also mention a conversation I had with a Byram rep about donating supplies. In addition to the typical places she said that to her surprise some of her customers donated to local hospitals (Apparently some smaller hospitals don't have any ostomy supplies, and their patients have to bring their own.)
Thanks for that info!
How are you doing now 3 days post--op?
I’m a mess! Yesterday I couldn’t get off the toilet to save my life. They let me start taking an anti- diarrhea med, and that helping a little. I did get to go home on the 3rd day, and that was a blessing. I know it will get better, but it’s definitely been a difficult transition.
I appreciate you checking in with me!😘
Yes add it to water and drink it all quickly as it turns to gel within a minute. Good luck and remember this is all worth it!
@catherine1290
Were you able to have protein drinks or smoothies immediately after? Or should I avoid dairy for a while?
I’m mostly eating just plain rice and chicken breast.
Thanks!
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I had my ileostomy reversed 2 years ago. I had a 7 day stay in the hospital while they waited for a first BM. Finally gave me Dulcolax suppository. Your first movements will be loose and urgent. When you go home be careful what you eat as your colon tends to revolt. Cheesesteak Hoagie with hot peppers was a poor choice on my part! You may have severe cramping at first. Go easy with frequent very small meals. Good luck! It's wonderful once it's over!