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How did you prepare mentally for Meningioma surgery?
Brain Tumor | Last Active: Apr 26 3:47pm | Replies (21)Comment receiving replies
I have/had two meningiomas, both behind the eye area and near the optic nerve. The first one was removed by craniotomy 5-6 weeks ago as it was pressing on my optic nerve and had moved my brain 1 cm. I didn't have time to prepare, for as soon as my eye dr found that the optic nerve was swollen, he had an MRI ordered. The MRI showed a 3cm meningioma and my dr ordered me to the ER immediately and surgery was done in a couple of days, very successfully. If I had had time to prepare, I would continue to trust in the skill of my surgeon and his team. I have faith. This is important to me. Very important is to have an after-surgery plan in place. My hospital did not have one, so I relied heavily on friends who brought food over a 2 week period. This was important from a nutrition standpoint, but also from a psychological standpoint. Many brought meals and stayed to talk, which was very helpful. Give yourself time to rest and heal. Read all you can about post-surgery self-care. One online site suggested painting after a craniotomy. I took that advice. Very nice. I wish you the very best.
Replies to "I have/had two meningiomas, both behind the eye area and near the optic nerve. The first..."
Thank you so much for your reply/input. My original post was before my scheduled Sept. 11 surgery. One week before surgery I got covid even though I have been double masking and going out for the bare necessities. (I think I got it from my husband who forgot to put on a mask a few times when he went into the grocery store.) At any rate, my surgery is rescheduled for October 16 and your positive experience was a god-send as I, once again, go through the stress of waiting. I will think positive after having read your post.
Craniotomy on Feb 28 for a meningioma , pathology came back malignant.
6 weeks of daily radiation,
Turned out to be a solitary fibrous tumor of the CNS.
Very rare.
I agree, aftercare is so important especially because of the uncertainty and fear. Don’t want to burden my family, thank God for good doctors, friends and faith.
I go tomorrow for a PET scan and MRI to see my prognosis. Praying for good results.
Good luck to you!
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Thank you so much! My surgery was very successful. They got it all and was benign. Getting along ok - very tired. Quite an unexpected journey. Friends have been great. I wish you success in your recovery!