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Looking for info and treatment for Mycobacterium abscessus

MAC & Bronchiectasis | Last Active: Nov 7, 2023 | Replies (20)
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@sueinmn

@nana43 Oh Dee, how frustrating. There is a new 2023 video from NJH about treating NTM, with two specifics that may interest you.


Particularly, he stresses the need for two cultures showing the bacteria before beginning treatment. And shows graphically how it progresses with and without treatment.
Near the end of the video, he shows the latest specific protocol NJH recommends for M abscessus.

I understand how frustrated you are feeling, and am sending you my very best healing thoughts.
Would you please let me know what the doctor says on the 29th.
Sue

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Replies to "@nana43 Oh Dee, how frustrating. There is a new 2023 video from NJH about treating NTM,..."
nana43 | @nana43 | Oct 4, 2023

Hi Sue!
Doctor wants to take the wait & see approach. He says my Bronchiectasis is mild and that this recent culture showed no detection of MAC. My CT scan from July still looks relatively good. He acknowledges the mycobacterium abscessus and it’s serious nature but feels that I should continue Big 3 until end of year, do another CT scan then, and re access the situation at that time. He has standing orders for Sputum testing every 2 weeks (HA!)) but thinks that since I have been able to produce sputum during exerbation that there is no need for evasive bronchoscopy right now. He thinks when I come off big 3 in December that I should start feeling better physically and he wants my body to have some rest from meds, says absessus treatment is harsh.
What do you think?
Thanks! Dee

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