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Carcinoid syndrome; NET not found
Neuroendocrine Tumors (NETs) | Last Active: Apr 22 1:06pm | Replies (16)Comment receiving replies
She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a few lessons on her liver and the tumor is located in the tail of her pancreas. The Lanreotide injection was the best route for her at this time. She has a wonderful oncologist. We have been told by several doctors that this is an incurable cancer. It has definitely been a rough time. Her husband passed away unexpectedly in February and she was diagnosed in May. Thank you for your encouragement and prayers. We certainly need them. ♥️
Replies to "She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a..."
Hang in there! I am having my 7th Lan injection tomorrow. Had distal pancreatectomy with spleen, gallbladder, part of stomach and full hysterectomy on Feb.1st. It gets better and easier after a few injections! And Lan really worked! I just had my CTscan and it showed slight( but there!) shrinking in my liver mets.
Prayers for you and your sister! You got this!!💜🦓
Has debulking surgery ever been suggested for your sister? I had that plus gallbladder removal as Lan damages the gallbladder and eventually has to be removed (in my case the tumor was in the tail of the pancreas, 20×16 cm, vascularized in the spleen, which had to go, too. And part of my stomach). I had some big lesions removed from the liver, as well. Maybe pain comes from issues with gallbladder? Ask questions! Are doctors planning to shrink the tumors first and then do surgery? Definitely ask for PET with Ga dotatate, NETs and mets glow! God be with you!! There is no cure( for now!), but people live reasonable life with this diagnosis! As the saying goes' I may not die FROM cancer, I will die WITH this cancer"💜🦓Hugs to you both! Support is very important!!
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Hi Meandmysis,
Your sister is definitely going through a lot right now. My condolences on the loss of her husband. As many have stated, such a difficult cancer to correctly diagnose and treat. Yes, it is incurable but treatable. There are several cancers like ours that can be treated, just no cure in sight for now. Ours, however, is so difficult to diagnose.
It is up to us to look beyond these and place our faith and prayers in God and the future. More and more people are being diagnosed with carcinoid/neuroendocrine tumors. I believe that the researchers are starting to pay more attention to it. They do like a mystery and I firmly and completely believe they will find, if not a complete cure, a better treatment or add-on treatment that will make all our lives easier.
I am so glad your Sister has you in her corner. My first husband died over 20 years ago after 32 years of marriage. But, I was fortunate and met a lovely man. We just celebrated our twentieth anniversary. Never lose faith. I know how hard that can be, but prayer and good deeds to help others put things in perspective. My late husband had a saying, "Good deeds are our purest prayers". A good deed which could just be a phone call to check on a friend, moves your thoughts away from your problems. It has helped me over the years to deal with several events in my life. Each day is a blessing to me. No matter how I feel physically, each day brings a blessing. YOU stay strong too. It hurts to see someone you love in pain. Stay strong sweetie, we are praying for you too.