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Rising PSA immediately following RP

Prostate Cancer | Last Active: Sep 26, 2023 | Replies (20)

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@web265

This is exactly what I went through (although my numbers were a little lower). Unfortunately it's apparently not that uncommon.

Fist couple PSA's showed decline and the 6 mos showed an uptick, marched me right to the RO's office. It's a bit of a kick in the teeth for sure. The surgery was about 2 years ago now and the radiation completed about 14 mos ago. There is light at the end of the tunnel. On Orgovyx for another 10 mos.

As the radiation treatments went on, my only side effect for the most part was fatigue at the end of treatment, maybe last 10 and a couple weeks beyond. I went to the gym and ran every day after treatment. I scheduled an early treatment time, packed breakfast which I ate in my vehicle after then straight to the gym. I firmly believe you have to sort of fight through it and not give into it if you're otherwise healthy.

My experience was this, while waiting for, and during, the radiation you'll continue to heal from your operation. That healing process seems to continue for a LONG time, or maybe I'm just getting used to the new me? This example may seem odd, but it's the most recent...But, at about the 1 year mark, I bought a motorcycle, did a little touring. I leaked a little and had to stop almost ever hour to relive myself and because I was uncomfortable sitting that long. I just got back (last night) from a two day trip with 15 hours in the saddle only stopping when I needed fuel (about every 2.5 hours). Felt great. So, there was some improvement even in the 12-24 month time frame. Be patient.

I realize how daunting the upcoming treatments seem, but take my word for it, they'll be "ringing the bell" (last day of treatment) before you know it. Try to be Positive!

Again, 2 years from surgery, 14 mos from radiation, still on ADT. The healing process is a bit slow. It's a new normal for sure, but, I enjoy all the activities I enjoyed before the mess started with the exception of the sexual ability is somewhere between really different and non existent, (so be creative!) I'm hoping that improves a little more after the ADT is over. We'll see!

Best of luck to you!!

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Replies to "This is exactly what I went through (although my numbers were a little lower). Unfortunately it's..."

Thank you! This is really helpful. I just need some hope that I also can do some activities that I enjoy and not feel unwell or tied down to actually be treatment.