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Has anyone had Paget's disease of the vulva?
Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)Comment receiving replies
Relief to have drains gone. I had them with my mastectomy. Could enjoy my shower afterward. Simple joys help.
Doesn’t remove pain & anxiety though, but you sound relatively calm. I applaud you.
Could be dumb question, but what will they radiate? You had clear margins, I believe, & Paget’s skin removed in surgery. Did lymph nodes indicate metastic location? Fortunately for me, after 10 years, I seem breast cancer free. I go to oncologist on October 10 after my last vulva surgery on May 2. No clear margins then. Not sure what comes next. Going to try using Aldara cream again. Not up for more surgery this soon.
Take care. I’m trying to enjoy each day, especially the lovely Fall weather here in Southern US.
BTW: Ignore any questions that you don’t wish to share. I wish you all the best.
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You are right about the pain and anxiety. Thinking of having this for the rest of your life is difficult since they give no hope for treatment at all. The problem is the area is a walking, sitting, sleeping area and the irritation of it never stops. Never a clear margin it seems. I wonder what decision is the best with hope and it isn't with anyone here. I did read a few people have tried alternative things like the lung cancer patient who developed a routine with the dog worm medication. I do know a few ovarian cancer women who are doing it now. How can we fly people to space, want to live on Mars and no one seem to understand this disease?? You are indeed a trouper! Good for you!