← Return to GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

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@krueg

I have pmr (diagnosed May of 2022) and gca (diagnosed Sept 2022) and was on high dose prednisone for months. I receive infusions of ACTEMRA and did experience a major relapse this past April and had to go back up to 50 mg but am now down to 14mg. Sleep has been very difficult for the past year but I am finally starting to sleep longer now that my dose is lower. Hopefully you will find that as you taper down. I have not experienced the jitters or shakiness that you have. I take supplements vitamin d, calcium, vitman k and magnesium to protect my bones from the prednisone. I wish you luck and hope you can continue to taper down and resolve your sleeping issues.

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Replies to "I have pmr (diagnosed May of 2022) and gca (diagnosed Sept 2022) and was on high..."

Thank you for your response. I have an upcoming appointment and will discuss tapering down. Good luck with your journey too.