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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 5 days ago | Replies (1363)Comment receiving replies
Thank you for your reply. I have had the same reaction but with Reclast after stopping Evenity after month 9. It only took about 3 days before the pain in my right hand increased followed by my left hand 6 weeks later. Reclast was 9 months ago. I have good days and bad but keeping active really helps. I am due for another Reclast in January that I am not going to take. So I was considering trying a bisphosphonate that isn't so long lasting. Actonel half life from what I recall is 30 days; I may be wrong about that. Anyway, I want to be able to evaluate whether I am getting an adverse reaction and switch to something else. Though I have no idea what an alternative would be.
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I literally was too concerned to take Reclast after my Evenity experience. I was told that out of 8k people that have used Evenity in the practice I go to that I was "the only one" who had the pain like you and I have experienced. I picked up a prescription for Actonel yesterday as the Fosomax started up the same joint/muscle pain I had with Evenity. Frustrating but I'll keep trying as I have to do something to keep the Evenity gains that actually were only significant in my spine. Had a DEXA last week, 6 months after stopping Evenity and spine has gone from -2.1 to -2.3 while I was taking Fosomax. Spine was -3.8 before Evenity. Actonel historically does not cause the muscle aches as much. Being hopeful!