Anyone taken Evenity (romosozumab) for Osteoporosis?

I feel the same way. I am 76, and even though the osteoporosis in my lower spine is in the “severe” range, I question whether the possible benefits of drugs outweigh the possible, and sometimes really awful, side effects. I can’t seem to make a decision.

Which drugs have you taken?

At my age I feel it necessary to factor in life expectancy, the fact that I am going to die at some point of something and which side effects I am willing to risk (if any arise). Although I have not had any noticeable side effects from forteo, alendronate or one dose of evenity, I am quite aware that any of these may be having or had negative as well as positive effects on my old body.

Several years ago i took boniva and had a bad side effect that sent me to the ER. I have not taken any other drugs since and am reluctant to do so.

That must have been terrifying. I'm sorry you had to go through it.

Thank you for your reply. I have had the same reaction but with Reclast after stopping Evenity after month 9. It only took about 3 days before the pain in my right hand increased followed by my left hand 6 weeks later. Reclast was 9 months ago. I have good days and bad but keeping active really helps. I am due for another Reclast in January that I am not going to take. So I was considering trying a bisphosphonate that isn't so long lasting. Actonel half life from what I recall is 30 days; I may be wrong about that. Anyway, I want to be able to evaluate whether I am getting an adverse reaction and switch to something else. Though I have no idea what an alternative would be.

I literally was too concerned to take Reclast after my Evenity experience. I was told that out of 8k people that have used Evenity in the practice I go to that I was "the only one" who had the pain like you and I have experienced. I picked up a prescription for Actonel yesterday as the Fosomax started up the same joint/muscle pain I had with Evenity. Frustrating but I'll keep trying as I have to do something to keep the Evenity gains that actually were only significant in my spine. Had a DEXA last week, 6 months after stopping Evenity and spine has gone from -2.1 to -2.3 while I was taking Fosomax. Spine was -3.8 before Evenity. Actonel historically does not cause the muscle aches as much. Being hopeful!

I understand your hesitation on being on medication due to your experience. Everyone on this site has different thoughts to taking medication and the fear of side effects. If your spine has severe Osteoporosis I would be very worried about a compression fracture. I have severe Osteoporosis in my hips and Osteopenia in my spine and my new Endocrinologist is worried about a compression fracture in my spine because I take care of my infant Grandson a lot ( lifting and bending down to get him). That's why she put me on Fosimax after I stopped taking Eventiy due to the side effects I had. Good luck in your decision, we are all here to support each other.

That would be challenging while fun at the same time. I have been told to never lift more than 20 pounds and always bend from the hips, never from the waist.
And yes we must all support each other. That helps.

Many years ago, I had a bad reaction to Bonita and Fosamax, so they put me on Evista(daily).
My Endocrinologist wants me to do Evenity then Prolia and I absolutely do not want to do Prolia for the rest of my life.
I just turned 70, 5’4”, 125 lbs, have always been very active. My spinal is -3.1.
I am very concerned about the side effects of all these drugs (which is just going to slow me down) and the cost, as well. I just don’t want to become another sheep in the pharmaceutical flock. I have an appointment with my doctor on Wed. I really don’t know what to do.