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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)
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@juju67

I had my drains removed and the stitches out on Thursday. I do have less pain and a bit more mobility, so I am feeling better. I have an appointment the first week of October to discuss what comes next. Because there are lymph nodes involved, radiation is a given. I won’t know anything further until my next appointment.
I hope you ladies are doing well.

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Replies to "I had my drains removed and the stitches out on Thursday. I do have less pain..."
chaka67 | @chaka67 | Sep 23, 2023

Relief to have drains gone. I had them with my mastectomy. Could enjoy my shower afterward. Simple joys help.
Doesn’t remove pain & anxiety though, but you sound relatively calm. I applaud you.
Could be dumb question, but what will they radiate? You had clear margins, I believe, & Paget’s skin removed in surgery. Did lymph nodes indicate metastic location? Fortunately for me, after 10 years, I seem breast cancer free. I go to oncologist on October 10 after my last vulva surgery on May 2. No clear margins then. Not sure what comes next. Going to try using Aldara cream again. Not up for more surgery this soon.
Take care. I’m trying to enjoy each day, especially the lovely Fall weather here in Southern US.
BTW: Ignore any questions that you don’t wish to share. I wish you all the best.

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