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GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Polymyalgia Rheumatica (PMR) | Last Active: Feb 12 11:08am | Replies (262)
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@smudge621

I was diagnosed with symptoms of GCA in April of 2023 with blood test results. I did not go under a biopsy because my Rheumatologist stated it could come back with a false negative. I was prescribed the weekly injection of Actemra and 60mg of Prednisone and have tapered back /forth due to temporal headache and tenderness. Currently I'm on 30 mg and having sleep issues with being jittery/shaky. Has anyone experienced these reactions. I do take my supplements of Vitamin D and Calcium and presently on a blood thinner too.

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Replies to "I was diagnosed with symptoms of GCA in April of 2023 with blood test results. I..."
krueg | @krueg | Sep 23, 2023

I have pmr (diagnosed May of 2022) and gca (diagnosed Sept 2022) and was on high dose prednisone for months. I receive infusions of ACTEMRA and did experience a major relapse this past April and had to go back up to 50 mg but am now down to 14mg. Sleep has been very difficult for the past year but I am finally starting to sleep longer now that my dose is lower. Hopefully you will find that as you taper down. I have not experienced the jitters or shakiness that you have. I take supplements vitamin d, calcium, vitman k and magnesium to protect my bones from the prednisone. I wish you luck and hope you can continue to taper down and resolve your sleeping issues.

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