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Multiple Autoimmune Diseases & Post Covid
Autoimmune Diseases | Last Active: Oct 12, 2023 | Replies (113)Comment receiving replies
Sorry so late to respond. The vaccine got me too. I’m 2.5 years in. I’ve tried so hard to keep going. I haven’t responded to any treatment. It seems to make it worse. In the beginning, even when I was told this was all in my head, they questioned MS too. I have given up everything except work. But I’m only working because I can work at home. I’m self employed (accountant too) and just do what I can. If I had to go to an office, it wouldn’t happen. I said that I would never consider disability. But am rethinking it. I’m in so much pain despite pain meds that I don’t know how much longer I can pull it off. I originally found this group when I did a google search. Despite never being around people with the exception of doctors and always masking, I got covid earlier this year. Due to my poor health, they put me on paxlovid. The poor health from the vaccines - but for the 5 days that I was on it, my inflammation and pain reduced significantly. That is something that needs to be addressed. I found another person here who had the same response. I don’t don’t know how to manage being on the brink of disability and I have defied death twice. I’m tough, but there are no answers here. I’m sure you feel the same way. I decided that I would travel anywhere, somehow, to get help. I just don’t know where to go. Please let me know how you are doing now. Lisa
Replies to "Sorry so late to respond. The vaccine got me too. I’m 2.5 years in. I’ve tried..."
Try functional medicine. Find a functional medicine doctor.
Hugs I tried for disability but did not have enough work credits. You have any questions on it let me know. I think we should chat more. It’s hard enough to go through this. And we have a sacred bond for being accountant goddesses.
It is NOT in your head. Vaccines lately have been running havoc on people. Mine started right before Covid when I took the Shingrix vaccine. People best start to do their research and not believe all the hype that Big Pharma puts out. My opinion only, but I keep reading more and more bad things happening to people who took vaccines especially after the 2nd dose! Beware!
I too have autoimmune and got Covid. I did go on Paxlovid which I’m sure shortened the recovery. Interesting I normally have very bad joint pain but while on Paxlovid I felt so much better and no joint pain and lots of energy in spite of the fact that I had Covid. I think some research on Paxlovid for autoimmune is definitely in order.
Hello @lidajade4mayo! I think this sounds like my husband and why I came to this page. He got the second dose of vaccine in Match/April of 2021 and he has not been the same since...deals with chronic pain intermittent from levels 4 to 9 and he has had so much lab work and testing done and the doctors are baffled. I just don't know where to go or what to do for him or where to go.
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Mayo in Minnesota. The others are knock-offs. No help there. Been to Mayo in 2014. Must go back. Not easy. 81 with multiple illnesses. Live in South Florida. Steroid myopathy and neuropathy, adrenal insufficiency GCA-can’t find knowledgeable rheumy —just as starters. Any suggestions?