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New diagnosis of Addison disease

Diabetes & Endocrine System | Last Active: Sep 25, 2023 | Replies (7)

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@lulamae

I was just diagnosed with Addison diease. I started the hydrocortisone today. I was wondering how long it takes for me to not feel completely exhausted...is there anything I can do for it? Are there any other treatments for it?

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Replies to "I was just diagnosed with Addison diease. I started the hydrocortisone today. I was wondering how..."

Give it a few months. And don’t skip even one dose. I want to give you hope but it’s a constant struggle. I have addisons and I have a thyroid disease since practically birth. I’m 35 and still struggling. I learned a while back when you have one auto immune disease or disorder usually they come in pairs or you have quite a few of them. Have you checked your T3 and T4? Also idk if it’s the addisons but I have issues converting my vitamins. Just between us…I’d try taking a liquid iron supplement everyday sprouts has good ones,ashwaghanda, coq10, the array of b vitamins and D vitamins also. Those are the basics that have made a huge deal. All the mushroom supplements help a lot. Just taking the steroids does nothing for me. I thought I was destined to live like this forever, so I started looking into other natural ways. There’s this nootropic I like that gets my head clear and less sleepy too….
L tyrosine worked pretty fast it’s great…don’t be afraid to experiment. My body’s probably different than yours but I would find out and be extremely thorough about checking your thyroid and other autoimmune diseases. I’d say almost everyone I know who has adrenal diseases have thyroid issues. And even if it’s on the lower or higher side it’ll make you feel terrible so just check that first and foremost. I swear by ashwaghanda…I think I’m surviving because of it…maybe try a mix of liquid iron/vitamin D all of them/ashwaghanda/ and L tyrosine…do your research and pick good brands…you’ll know within the first week that should help BIGTIME! also maybe you need to up your steroid dose after a while. I noticed early on I needed a higher dose of hydrocortisone. Talk to your dr and tell him you want to try a little higher. It took 2 years of telling him it wasn’t helping to realize I needed at least double in the am and double in the pm…it helped immensely. They tend to start us a a general generic dose that everyone gets but we all work differently. Like if I’m doing sports or working out I need a higher dose. The more stress my body has or the more I’m doing I needed higher doses….talk to him about this. It’s worked for friends of mine. And if he’s not willing to try new things don’t wait years….go get a new one. I’ve had nothing but terrible endocrinologist my entire life. 80%of the time they had no clue what they were doing beyond the general dosing recommendations…there are hidden gems of drs out there who are willing to help more and try new things. There’s also other medications they can give you with the steroids…ask about those. Also join the Reddit group Addisons you will be able to read so much and learn so much….keep fighting everyday is a win for us ❤️you got this! Just keep learning as much as you can everyday. Don’t just leave it to your dr and the steroids to help…we need more help in other ways…the steroids alone barely did anything for a lot of us! -Hugs