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Carcinoid syndrome; NET not found

Neuroendocrine Tumors (NETs) | Last Active: Apr 22 1:06pm | Replies (16)

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@terlato

I have been going through the same thing! Symptoms but I get no answers. My doctors told me very hard to diagnose Neuroendocrin/carcinoid tumors, especially if outside the intestine. I've been to Endocrinologist who did every test possible and she was wonderful. She truly believes it is GI and told me to keep going and get as many opinions as needed. My GI just told me I'm fine even though my blood work wasn't normal for the what he ordered. So, instead of going from doctor to doctor and bloodwork after bloodwork, I checked out the Prenuvo Scan in California that is suppose to pick up any tumor anywhere, and I'm sure other problems. I just want an answer, good or bad, and if there is something, then it can be treated and hopefully the symptoms will subside. I heard most doctors don't think this scan is for real, but at this point I just want answers. I found out about this when I read about Maria Menounos who was dealing with the same and all her scans and ultrasounds came out normal. She did this scan and it found stage 2 pancreatic cancer. The only doctor standing behind me is my Endocrinologist and she feels that I'm doing the right thing. Remember, it's your body and trust your instinct. We need to be our own advocate for our health. Wish me luck and I will post the results later in October. Don't get discouraged willowme1963, just keep going to get answers. We know what we are going through and have to live with these crazy symptoms!

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Replies to "I have been going through the same thing! Symptoms but I get no answers. My doctors..."

Prayers and we'll wishes for REAL results and answers! Thank you so much for sharing everyone and will keep pressing on.

Hi Teralto,
Wanted to wish you luck in finding answers to your symptoms. I have read about the Prenuvo Scan and it seems to offer hope to many people. Have you had a proper PET scan to search for the neuroendocrine/carcinoid tumors? Although, that too can come out normal.

I just wanted you to know we all praying for a good outcome of your testing.

Blessings to you and your family.